| In-Person Training |
| Title |
Website |
Description |
| Education in Palliative and End-of-Life Care Program (EPEC) |
epec.net/epec_pediatrics.php |
An annual offering of 23 core and 2 elective topics in pain and symptom management in pediatric palliative care taught as a combination of distance learning modules in-person conference sessions. Curriculum translated into French and Spanish. More here: https://www.sciencedirect.com/science/article/abs/pii/S0885392419303136. |
| Program in Palliative Care Education and Practice (PCEP) Pediatric Track |
http://www.hms.harvard.edu/pallcare/PCEP/PCEP.htm |
Week-long, in-person learning opportunities for clinician educators who wish to become expert in the practice and teaching of comprehensive pediatric palliative care. |
| End-of-Life Nursing Education Consortium Pediatric Palliative Care Train-the-Trainer (ELNEC-PPC) |
http://www.aacn.nche.edu/elnec/trainings/national#PEDIATRIC |
Train-the-trainer format pediatric palliative care in-person curriculum for nurses. |
| Pediatric Pain Masters Class |
http://noneedlesspain.org/ppmc/ |
Education in pharmacological, medical, psychosocial and integrative therapies for pediatric patient pain management from a holistic and interdisciplinary perspective. |
| National Hospice and Palliative Care Organization (NHPCO) Pediatric Palliative Care Training (PPCT) |
http://www.nhpco.org/childrenspediatricschipps/pediatric-palliative-care-training-0 |
Two-day intensive pediatric training on the provision of quality care to infants and children facing life-threatening conditions and their families. |
| Online Training – Pediatric Specific |
| Title |
Website |
Description |
| CSU Institute for Palliative Care – Adult to Pediatric: Preparing Palliative Care Professionals to Care for Pediatric Patients |
https://csupalliativecare.org/programs/pediatrics/ |
Online curriculum that equips hospice and palliative care practitioners with the knowledge and resources to ensure young patients and their families receive the best care possible |
| International Children’s Palliative Care Network (ICPCN) E-Learning Programme |
http://www.icpcn.org/icpcns-new-elearning-programme/ |
Online courses on pain assessment and management in children, childhood development, communicating with children, and pediatric grief and bereavement. |
| Vision of Hope: Integration of Palliative Care in Chronic Pediatric Disease |
http://www.bioethicsinstitute.org/research/projects-2/hope |
PPC curriculum specifically focused on patients with Sickle Cell Disease or Duchenne Muscular Dystrophy. Short interactive modules. |
| Oncotalk |
http://depts.washington.edu/oncotalk/ |
Learning modules with pearls and pitfall examples to foster medical professional’s comfort in discussing difficult topics with patients. |
| Pediatrics Ethics Consortium (PEC) |
http://www.pediatricethics.org/ |
Online resources concerning ethical issues – offers relevant to palliative care. |
| Online Training – General Palliative Care |
| Title |
Website |
Description |
| NHPCO’s End-of-Life Online (E-OL) |
https://www.nhpco.org/online-learning/ |
Online courses and webcasts relevant to palliative care to include clinical and psychosocial/spiritual domains. Not Pediatric specific. |
| Stanford Palliative Care Training Portal |
http://palliative.stanford.edu/ |
Training portal on an array of topics from opioid conversion, dyspnea, clinical prognostication, and care transitions. |
| Online Resources – Pediatric Specific |
| Title |
Website |
Description |
| AAP Policy Statement: Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations |
https://pediatrics.aappublications.org/content/pediatrics/132/5/966.full.pdf |
Guidelines and recommendations from AAP on PPC and PHC |
| DFCI Blue Book – Pocket Clinical Resource |
http://pinkbook.dfci.org/ |
Pocket clinical resource for pediatric pain and symptom management. Same website also has two adult pocket guides: pain management and nausea and vomiting symptom management. |
| Association for Children with Life-Threatening or Terminal Conditions and Their Families (ACT) Professional Resources |
http://www.togetherforshortlives.org.uk/professionals/resources
|
Downloadable symptom control guidelines, palliative care commissioning reports, and patient education pages. |
| Pediatric Decision Aids – Coalition for Compassionate Care of CA |
https://coalitionccc.org/pediatric-decision-aids/ |
PDF Decision Aids for breathing machines, CPR, and tube feeding |
| UK Association for Pediatric Palliative Medicine (APPM) |
https://www.appm.org.uk/training/combined-curriculum/ |
Online guide for pediatric palliative medicine competencies, including areas for competency and skill levels expected at different points in training |
| Courageous Parents Network |
www.courageousparentsnetwork.org
|
Resource for parents of seriously ill children. Many tools for providers to learn and/or use with families also. |
| Workshops in End-of-Life Training for Health Professionals in Children’s Hospitals |
https://open.umich.edu/find/open-educational-resources/medical/workshops-end-life-training-health-professionals-childrens-hospitals |
Online modules specifically to guide clinicians through end-of-life for newborns, children, and adolescents who die in the hospital. |
|
NINR Palliative Care for Children
Palliative Care: Conversations Matter
|
https://www.ninr.nih.gov/newsandinformation/conversationsmatter#.VY6-pUay4nJ
|
Tools and resources to help clinicians discuss palliative care with pediatric patients and their families.
Download or order complimentary print copies in English or Spanish of customizable tear-off pad for Palliative Care: Conversations Matter ®
|
| Online Resources – General Palliative Care |
| Title |
Website |
Description |
| American Academy of Hospice and Palliative Medicine (AAHPM) Focused Assessment and Study Tool (HPM FAST) |
http://aahpm.org/self-study/hpm-fast |
Boards-focused learning modules with accompanying multiple choice study questions. |
| Center to Advance Palliative Care (CAPC) |
https://www.capc.org/training/ |
Online palliative modules including both operational and clinical topics. Nothing pediatric-specific. |
| Clinical Practice Guidelines for Quality Palliative Care, 4th Ed. |
http://www.nationalcoalitionhpc.org/ncp/?utm_source=NCP+Clinical+Practice+Guidelines+&utm_campaign=NCP+Guidelines&utm_medium=email |
PDF guidelines, primarily adult-focused but the 4th edition is the first to include pediatrics also |
| MJHS Institute for Innovation in Palliative Care – PDF Resources |
https://www.mjhspalliativeinstitute.org/ccb/professional-resources-2/?mypage=1 |
Online resources for palliative care topics, mostly clinical and adult-focused. |
| Palliative Care Online Journal Club |
http://journalclub.pallcare.info/index.php |
Filtered and organized articles on palliative care for current, convenient browsing. Includes adult palliative care. |
| Vital Talk |
http://vitaltalk.org |
An array of talking maps and teaching maps relevant to conflict resolution, bearing witness, navigating emotions, and family conversations. |
| Certificate Programs |
| Title |
Website |
Description |
| University of Washington Graduate Certificate Program in Palliative Care, Pediatric Track |
www.uwpctc.org |
9-month interprofessional program with a combination of online and distance learning as well as three in-person workshops. |
| Program Development |
| Title |
Website |
Description |
| Palliative Care Leadership Centers |
https://www.capc.org/palliative-care-leadership-centers/ |
A national initiative of the Center to Advance Palliative Care (CAPC) for year-long palliative care team mentoring with in-person visits, webinars, and virtual office hours. |
| CAPC Pediatric Palliative Care Delivery Guide – Hospital-Based |
https://www.capc.org/toolkits/designing-a-pediatric-palliative-care-program/ |
Online resources, mostly members-only, for the development of a hospital-based PPC team. Guidance on program financing, making the case to C-suite, program design, program marketing, program measurement, etc. |
