Pediatric Palliative Care

Our mission is to improve the quality of hospice & palliative care for everyone in Louisiana & Mississippi.

Gulf States Pediatric Palliative Care Consortium

All children and families in the gulf state region facing serious illness will have access to comprehensive support through the entire duration of serious illness both in the hospital and the home with the goal to prevent, anticipate and mitigate suffering in all its forms.

Mission:  We will achieve our vision through an interdisciplinary workforce advocating for every child and family to have access to the support necessary to live as well as possible with serious illness.

Our interdisciplinary workforce will:

  • Strive to advance education of the gulf coast community to  provide quality clinical care both in our hospitals and in the home
  • Collaborate with our Gulf Coast community to advance education

  • Engage in advocacy

  • Build an Equitable, Diverse and Inclusive Deep South Community Workforce to Provide Excellent Care for ALL Families Facing Serious Illness, especially our families of color. 

  • Provide leadership and expertise in the region
  • Identify utilization and gaps within hospice and palliative care in Louisiana & Mississippi


Send questions to [email protected] 

Definition of Pediatric Palliative Care per NHPCO Guidelines:

Beneficial at any stage of a serious illness (and at any age), palliative care is an interdisciplinary care delivery system designed to anticipate, prevent, and manage physical, psychological, social, and spiritual suffering to optimize quality of life for patients, their families and caregivers. Palliative care can be delivered in any care setting through the collaboration of many types of care providers. Through early integration into the care plan of seriously ill people, palliative care improves quality of life for both the patient and the family.

Gulf States Bereavement Resources
  • Eligibility Requirements:
    1. Must be miscarriage, stillbirth, or death of an infant up to one year of age
    2. Must be resident of one of the following LA parishes:
    o Lafayette
    o Vermillion
    o Iberia
    o St. Landry
    o Acadia
    o Avoyelles
    o Evangeline
    o Jeff Davis
    o St. Martin
    o St. Mary

  • Saul's Light
    Saul's Light Video


Clinical Guidelines & Helpful Resources:

Educational Events and Conferences

Pediatric Palliative Care Webinars

Education & Training Resources

In-Person Training
Title Website Description
Education in Palliative and End-of-Life Care Program (EPEC) An annual offering of 23 core and 2 elective topics in pain and symptom management in pediatric palliative care taught as a combination of distance learning modules in-person conference sessions. Curriculum translated into French and Spanish. More here:
Program in Palliative Care Education and Practice (PCEP) Pediatric Track Week-long, in-person learning opportunities for clinician educators who wish to become expert in the practice and teaching of comprehensive pediatric palliative care.
End-of-Life Nursing Education Consortium Pediatric Palliative Care Train-the-Trainer (ELNEC-PPC) Train-the-trainer format pediatric palliative care in-person curriculum for nurses.
Pediatric Pain Masters Class Education in pharmacological, medical, psychosocial and integrative therapies for pediatric patient pain management from a holistic and interdisciplinary perspective.
National Hospice and Palliative Care Organization (NHPCO) Pediatric Palliative Care Training (PPCT) Two-day intensive pediatric training on the provision of quality care to infants and children facing life-threatening conditions and their families.
Online Training – Pediatric Specific
Title Website Description
CSU Institute for Palliative Care – Adult to Pediatric: Preparing Palliative Care Professionals to Care for Pediatric Patients Online curriculum that equips hospice and palliative care practitioners with the knowledge and resources to ensure young patients and their families receive the best care possible
International Children’s Palliative Care Network (ICPCN) E-Learning Programme Online courses on pain assessment and management in children, childhood development, communicating with children, and pediatric grief and bereavement.
Vision of Hope: Integration of Palliative Care in Chronic Pediatric Disease PPC curriculum specifically focused on patients with Sickle Cell Disease or Duchenne Muscular Dystrophy. Short interactive modules.
Oncotalk Learning modules with pearls and pitfall examples to foster medical professional’s comfort in discussing difficult topics with patients.
Pediatrics Ethics Consortium (PEC) Online resources concerning ethical issues – offers relevant to palliative care.
Online Training – General Palliative Care
Title Website Description
NHPCO’s End-of-Life Online (E-OL) Online courses and webcasts relevant to palliative care to include clinical and psychosocial/spiritual domains. Not Pediatric specific.
Stanford Palliative Care Training Portal Training portal on an array of topics from opioid conversion, dyspnea, clinical prognostication, and care transitions.
Online Resources – Pediatric Specific
Title Website Description
AAP Policy Statement: Pediatric Palliative Care and Hospice Care Commitments, Guidelines, and Recommendations Guidelines and recommendations from AAP on PPC and PHC
DFCI Blue Book – Pocket Clinical Resource Pocket clinical resource for pediatric pain and symptom management. Same website also has two adult pocket guides: pain management and nausea and vomiting symptom management.
Association for Children with Life-Threatening or Terminal Conditions and Their Families (ACT) Professional Resources


Downloadable symptom control guidelines, palliative care commissioning reports, and patient education pages.
Pediatric Decision Aids – Coalition for Compassionate Care of CA PDF Decision Aids for breathing machines, CPR, and tube feeding
UK Association for Pediatric Palliative Medicine (APPM) Online guide for pediatric palliative medicine competencies, including areas for competency and skill levels expected at different points in training
Courageous Parents Network


Resource for parents of seriously ill children. Many tools for providers to learn and/or use with families also.
Workshops in End-of-Life Training for Health Professionals in Children’s Hospitals Online modules specifically to guide clinicians through end-of-life for newborns, children, and adolescents who die in the hospital.

NINR Palliative Care for Children

Palliative Care: Conversations Matter


Tools and resources to help clinicians discuss palliative care with pediatric patients and their families.

Download or order complimentary print copies in English or Spanish of customizable tear-off pad for Palliative Care: Conversations Matter ®

Online Resources – General Palliative Care
Title Website Description
American Academy of Hospice and Palliative Medicine (AAHPM) Focused Assessment and Study Tool (HPM FAST) Boards-focused learning modules with accompanying multiple choice study questions.
Center to Advance Palliative Care (CAPC) Online palliative modules including both operational and clinical topics. Nothing pediatric-specific.
Clinical Practice Guidelines for Quality Palliative Care, 4th Ed. PDF guidelines, primarily adult-focused but the 4th edition is the first to include pediatrics also
MJHS Institute for Innovation in Palliative Care – PDF Resources Online resources for palliative care topics, mostly clinical and adult-focused.
Palliative Care Online Journal Club Filtered and organized articles on palliative care for current, convenient browsing. Includes adult palliative care.
Vital Talk An array of talking maps and teaching maps relevant to conflict resolution, bearing witness, navigating emotions, and family conversations.
Certificate Programs
Title Website Description
University of Washington Graduate Certificate Program in Palliative Care, Pediatric Track 9-month interprofessional program with a combination of online and distance learning as well as three in-person workshops.
Program Development
Title Website Description
Palliative Care Leadership Centers A national initiative of the Center to Advance Palliative Care (CAPC) for year-long palliative care team mentoring with in-person visits, webinars, and virtual office hours.
CAPC Pediatric Palliative Care Delivery Guide – Hospital-Based Online resources, mostly members-only, for the development of a hospital-based PPC team. Guidance on program financing, making the case to C-suite, program design, program marketing, program measurement, etc.
Professional Organization Partnerships
Listing of Professional Organizations Website
American Academy of Hospice and Palliative Medicine (AAHPM) – Pediatric Special Interest Group
American Academy of Pediatrics (AAP) – Section on Hospice and Palliative Medicine
American Pain Society Shared Interest Groups (Palliative Care and Pain in Infants, Children, and Adolescents SIGs)
American Society of Pediatric Hematology Oncology (ASPHO) Palliative Care Special Interest Group
Center to Advance Palliative Care (CAPC) – Pediatric Palliative Care
Children’s Hospice and Palliative Care Services Project (ChiPPS)
Children’s International Project on Palliative/Hospice Services Workgroup
Children’s Hospice International (CHI)
Hospice and Palliative Nurses’ Association (HPNA)
Institute for Patient- and Family-Centered Care (IFCC)
International Children’s Palliative Care Network (ICPCN)
National Consensus Project for Quality Palliative Care (NCP)
National Hospice and Palliative Care Organization (NHPCO)
National Pediatric Hospice and Palliative Care Collaboration (NPHPCC)
National Palliative Care Research Center (NPCRC)
Social Work in Hospice and Palliative Care Network (SWHPN)


Hospice and Palliative Care Terms and Helpful Videos

VIDEO Patient Perspectives: The Shu Family’s Palliative Care Story  


 Helpful Resources for Families Facing Serious Illness:



Helpful links to BOOKS for children/families:  

Courageous Parents Network